Here's some other hepatitis C weblogs I've come across recently:
Miles Keaton Andrew's Hepatitis C Blog - from a great guy (& a friend) who's been a non-responder to treatment (so far!)
My 'Hepatitis C' Weblog - a blog and treatment journal from Ron Metcalfe in England
Hep C Journal - a treatment diary from Elizabeth Anne in Canada
HCV Treatment Journal - a treatment diary from Sue in Canada
Chronic Hepatitis C - a treatment diary from Debbiejo in Arizona
Heart and Soul: Me 'n' Hep C - a journal from Peter in Vermont, who recently ended treatment
Gathering Wool: Tales of a Black Sheep Living in Post-Christian America
Hepatitis C Outreach Project - from long-time HCV advocate Teresa Hanbey
Hepatitis News - links to news stories about viral hepatitis
I've also been seeing more blogs that aren't hepatitis C-specific, but incorporate the authors' experience with hepatitis C and treatment, mixed in with other aspects of their lives and observations:
"I turned to look but it was gone..." - a New York City graphic artist who just started treatment with Pegasys
Notes from Nina - by Nina Paul, author of Living with Hepatitis C for Dummies
life after interferon - by a blogger living in Israel who achieved a sustained virologic response to treatment last year
Links to many more blogs can be found on these sites:
Other Hepatitis C Blogs (from Ron Metcalfe; scroll down and look on the right column)
Hepatitis C Blogs (from Nina Paul)
Not quite a blog, but an interesting new website using wikis with multiple authors:
Hepatitis C Virus Action Now - started by Rudi Cilibrasi, a computer programmer with hepatitis C, who recently wrote about his struggle to obtain medications for treatment on kuro5hin
Are there other hep C blogs you read and recommend? Add a comment and let me know.
Hi there! Thanks for the link. The URL should be actually http://hcvaction.org/
Can you update it above? Thanks again for your kind support,
Rudi
Posted by: Rudi Cilibrasi | July 14, 2005 at 02:09 AM
Hello,
Is it appropriate to list my own blog, along with my Hep C experiences? Everything I know I learned from Miles and from Captain Xanax, so the blog is going well. Well, as well as one can expect with Hep C, so much to write about, so little to do about the virus.I'm just a gray haired mom with a bad mouth, non-responder and an attitude about the medical profession and America's cultural bias about Hepatitis C in general. Sometimes, I can be funny tho. Let me know. Thanks!
Jackie
Posted by: Jackson | September 17, 2005 at 09:46 PM
I finally told my fiance I had Hep C. She forgave me, was tested for it and was positive, she forgave me and married me "for better or worse". 2 1/2 years later she started a divorce, cause of action: infecting her with Hep C. She wants everything and is being very vindictive toward me. Fortunately there is a two year statue of limitations on medical injury cases. I am confident that her kharma is tarnished, though unfortunately, and that she will be seen for what she really is: A GOLD DIGGER!!!"
If anyone wants help understanding any of this please feel free to contact me and I will do my best to help explain the legal ramifications. Maybe someone can help me understand how such great love can turn to apparent hate.
Posted by: Anonymous | May 30, 2006 at 07:50 PM
As i was browsing the web i found one more blog deals with all kinds of hepatitis articles.
http://about-hepatitis.blogspot.com
Posted by: steve | March 25, 2007 at 02:13 PM
I am hepatitis patient. As i was browsing the web I have gone through one article about hepatitis c treatments and its benefits., Does Hepatitis c treatment can cause advantages and disadvantages, totally confused about this You can find the article here:
http://about-hepatitis.blogspot.com/2007/03/hepatitis-c-treatment-benefits-and.html. Lemme know your comments about it.
Posted by: steve | March 25, 2007 at 02:13 PM
Hi Steve --
I read the article you linked to, and I disagree with this section:
"If a chronic hepatitis was just diagnosed than treatment must begin soon."
Most doctors I know would say that decisions about treatment must balance the likelihood of success -- which varies according to factors such as genotype, viral load, HIV status, and ethnicity -- with the risk of liver disease progression and the possibility of side effects. A lot of people with hepatitis C -- even people who have been infected for years or decades -- have minimal liver damage and are at low risk of developing cirrhosis in the immediate future. These people generally do not require immediate treatment.
The best way to find out what condition your liver is in -- and whether you need hepatitis C treatment -- is to get a liver biopsy from a specialist.
Hope this helps,
Daniel
Posted by: Daniel Raymond | March 26, 2007 at 03:08 PM
My friend has Hep C and we have very different views on responsibility. I believe they have a moral responsibility to inform their partner, but my question is this: Do they have a legal responsibility of disclosure? Thank-You.
Posted by: Sharon | April 22, 2008 at 02:54 PM